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Started By
Message
Cancer...Is the pain or the mental battles the worse?
Posted on 6/18/23 at 8:41 pm
Posted on 6/18/23 at 8:41 pm
(no message)
This post was edited on 6/19/23 at 12:33 am
27
Posted on 6/18/23 at 8:42 pm to TigerinPurgatory
Sorry to hear. What kind?
Posted on 6/18/23 at 8:43 pm to TigerinPurgatory
Pain if it's you
Mental if it is a loved one
Mental if it is a loved one
Posted on 6/18/23 at 8:43 pm to TigerinPurgatory
Neighbor said chemo
Cancer was nothing
If he had to go through another treatment he would’ve tapped out
Cancer was nothing
If he had to go through another treatment he would’ve tapped out
Posted on 6/18/23 at 8:44 pm to TigerinPurgatory
Terminal or treatable?
Posted on 6/18/23 at 8:44 pm to TigerinPurgatory
shite man,,
Posted on 6/18/23 at 8:44 pm to TigerinPurgatory
quote:hope you get right with the big guy
TigerinPurgatory
Posted on 6/18/23 at 8:51 pm to TigerinPurgatory
No first hand experience but one survivor said you feel very lonely, like nobody in the world understands what you're going through.
So....mental.
So....mental.
Posted on 6/18/23 at 8:51 pm to TigerinPurgatory
Depends on the type. Many aren’t painful. But, I watched my wife die from liver cancer that had metastasized from her breast. It was an awful way to go. Mentally and physically. Very unfair for such an angel
Posted on 6/18/23 at 8:53 pm to TigerinPurgatory
Been thru it, you can do it! The good lord doesn't give you anything you can't handle. Worse thing for me was the guilt I felt for causing worry to my family. You got this !!!!
Posted on 6/18/23 at 9:02 pm to TigerinPurgatory
Only pain I had from mine was a bout of colitis that was caused by a cancerous lymph node interacting with my intestine, then lower back pain when a tumor started pressing on the right kidney - wound up having to get that removed from the damage after it was over.
Chemo by far sucked arse the most. I lost about 50 lbs going through twelve cycles of cisplatin/etopocide. Still have mild neuropathy in my toes and fingers, nonstop tinnitus, and some skin thing I'm going to get checked out next week with a dermatologist.
The mentally hardest part was the 36 hours leading up to treatment, having to willingly submit yourself to it. When I went in for my last stem cell transplant at Tulane, I cried. Grown arse 40 year old man broke down in tears outside the cancer center because it was so horrible to go through again. I kept family away from the hospital for the weeks I was in there because I didn't want them to see me in that condition, it was horrible. I had toooons of support while I was going through it - family, friends, even here in the GMT every morning.
Mentally it's tough fighting that, I definitely recommend therapy while going through it. At Tulane they have a guy named Aaron that is really good, he knows his role is mainly to be the open ears for the patient to vent and possibly point people in the right direction for assistance. He popped in my room several times while I was in quarantine for a month at a time.
Chemo by far sucked arse the most. I lost about 50 lbs going through twelve cycles of cisplatin/etopocide. Still have mild neuropathy in my toes and fingers, nonstop tinnitus, and some skin thing I'm going to get checked out next week with a dermatologist.
The mentally hardest part was the 36 hours leading up to treatment, having to willingly submit yourself to it. When I went in for my last stem cell transplant at Tulane, I cried. Grown arse 40 year old man broke down in tears outside the cancer center because it was so horrible to go through again. I kept family away from the hospital for the weeks I was in there because I didn't want them to see me in that condition, it was horrible. I had toooons of support while I was going through it - family, friends, even here in the GMT every morning.
Mentally it's tough fighting that, I definitely recommend therapy while going through it. At Tulane they have a guy named Aaron that is really good, he knows his role is mainly to be the open ears for the patient to vent and possibly point people in the right direction for assistance. He popped in my room several times while I was in quarantine for a month at a time.
Posted on 6/18/23 at 9:04 pm to TigerinPurgatory
For me, it was the all the testing and uncertainty as it was diagnosed and staged. When treatment finally began it felt like I (we/they) were finally doing something. There was a plan in place.
That said, there's all kind of cancers and all kinds of treatments. Some are infinitely more, or less, painful than others. None are any fun, but if you're fortunate, you'll just be aggravated with all the bullshite for a period of time. The aggravation continues as the monitoring goes on, but its way less aggravating than treatment.
Honestly, I think it's probably tougher when a loved one has it.
That said, there's all kind of cancers and all kinds of treatments. Some are infinitely more, or less, painful than others. None are any fun, but if you're fortunate, you'll just be aggravated with all the bullshite for a period of time. The aggravation continues as the monitoring goes on, but its way less aggravating than treatment.
Honestly, I think it's probably tougher when a loved one has it.
Posted on 6/18/23 at 9:05 pm to TigerinPurgatory
Daughter found out she had cancer just after Easter. After chemo she wasn't the same person. Died next Feb. That's what was hard.
Posted on 6/18/23 at 9:35 pm to TigerinPurgatory
Non-Hodgkin’s lymphoma Sporadic Burkitt’s lymphoma.
Surgery
bone marrow transplant
inpatient chemo
Pain- mostly from the tumors in the lower abdomen pressing against my nerves.
mental strain- in the beginning you don't know what to expect for surgery and treatment.
Surgery - easy 8 hours. I was up walking the next morning as my surgery went to 3 am. Walk alot to wake up your stomach area which is where they did my surgery. I was in the hospital a week.
Bone Marrow transplant
- don't feel needle going in if the numb it right
- feel needle when it near the bone.
- In a room with a room before the room where nurses, doctors, limited visitors put the chicken suit (body suit, gloves, mask), and almost isolated for a few days.
Chemo
- 4 treatments mostly 1 to 2 weeks inpatient.
- Come home and rest for a few days when counts get back up go back in for your next treatment.
- First time your hips jump and hurt from bone marrow trying to produce blood cells when your anemic is scary.
After that you understand it is coming and isolate a few days as you blood counts are low.
- Hated when they did the spinal tap to put chemo in my spine.
If they offer to put the thing in your head then do it versus doing the spinal tap.
- 1st one is rough as have to adjust to the medications to counter act the chemo.
- Lose body hair, hair on your head, eye lashes, mouth sores, etc.
Minor stuff, but yes it wears on you mentally.
- After that you have good and bad days.
All I can really say is you going to have good and bad days.
Take them in stride and your job during this time is to get better.
If you have any pain or usual things going on let the PA or doctor know during those visits.
Surgery
bone marrow transplant
inpatient chemo
Pain- mostly from the tumors in the lower abdomen pressing against my nerves.
mental strain- in the beginning you don't know what to expect for surgery and treatment.
Surgery - easy 8 hours. I was up walking the next morning as my surgery went to 3 am. Walk alot to wake up your stomach area which is where they did my surgery. I was in the hospital a week.
Bone Marrow transplant
- don't feel needle going in if the numb it right
- feel needle when it near the bone.
- In a room with a room before the room where nurses, doctors, limited visitors put the chicken suit (body suit, gloves, mask), and almost isolated for a few days.
Chemo
- 4 treatments mostly 1 to 2 weeks inpatient.
- Come home and rest for a few days when counts get back up go back in for your next treatment.
- First time your hips jump and hurt from bone marrow trying to produce blood cells when your anemic is scary.
After that you understand it is coming and isolate a few days as you blood counts are low.
- Hated when they did the spinal tap to put chemo in my spine.
If they offer to put the thing in your head then do it versus doing the spinal tap.
- 1st one is rough as have to adjust to the medications to counter act the chemo.
- Lose body hair, hair on your head, eye lashes, mouth sores, etc.
Minor stuff, but yes it wears on you mentally.
- After that you have good and bad days.
All I can really say is you going to have good and bad days.
Take them in stride and your job during this time is to get better.
If you have any pain or usual things going on let the PA or doctor know during those visits.
This post was edited on 6/18/23 at 9:39 pm
Posted on 6/18/23 at 9:49 pm to TigerinPurgatory
Mental is worse. For me. Lung cancer, non-small cell, stage 3. Finishing Infimzi immunotherapy next month. So far it seems like the cancer is gone, dissolved with the Infimzi after the chemo and radiation.
But yeah, you feel alone and end up wondering if it was worth it, if you don’t watch out. I’m so tired. So tired. It’s hard to know what causes all the joint pain I have now. Bad, bad trigger finger and muscle spasms at times.
The radiation was worst for me, too. Couldn’t eat right for several weeks. Pain meds did not work well at all. Constipated the hell out of me.
My body is wrecked, but it’s mostly fatigue and joint pain. Cannot take anything but Tylenol for any inflammation. Once the immunotherapy is over I will have a better handle on what my body is really like.
The biggest key is to not stress out. That is hard, but there are prescriptions for that.
But yeah, you feel alone and end up wondering if it was worth it, if you don’t watch out. I’m so tired. So tired. It’s hard to know what causes all the joint pain I have now. Bad, bad trigger finger and muscle spasms at times.
The radiation was worst for me, too. Couldn’t eat right for several weeks. Pain meds did not work well at all. Constipated the hell out of me.
My body is wrecked, but it’s mostly fatigue and joint pain. Cannot take anything but Tylenol for any inflammation. Once the immunotherapy is over I will have a better handle on what my body is really like.
The biggest key is to not stress out. That is hard, but there are prescriptions for that.
Posted on 6/18/23 at 10:22 pm to TigerinPurgatory
The cancer doesn’t kill you, the treatment does.
Posted on 6/18/23 at 10:23 pm to TigerinPurgatory
I’m sorry you’re going through this. May god give you and your family strength. God bless.
Posted on 6/18/23 at 10:41 pm to TigerinPurgatory
Depends where it is at.
Radiation destroyed my throat and mouth.. 17 months later still have significant issues, like no sliva and scar tissue making it hard to swallow.
Chemo made me ill but it lasted only a few days.
The cancer for me wasn't painful except for a sore throat prior to treatment.
However, other parts of the body cancer can be extremely painful....pancreas is one.
Radiation destroyed my throat and mouth.. 17 months later still have significant issues, like no sliva and scar tissue making it hard to swallow.
Chemo made me ill but it lasted only a few days.
The cancer for me wasn't painful except for a sore throat prior to treatment.
However, other parts of the body cancer can be extremely painful....pancreas is one.
Posted on 6/18/23 at 10:55 pm to TigerinPurgatory
For me, it's the pain. Mine is bladder. As others have said, a whole lot of it is from the treatment. The chemo nearly did me in itself back in September. Spent 12 days in the hospital over 3 stays just during that time. Radiation can really do a number on your organs as well.
Mental for me has not been bad. I've been lucky and led a blessed life with great family, friends, neighbors, etc. For loved ones, of course the mental and emotional part can be difficult.
Mental for me has not been bad. I've been lucky and led a blessed life with great family, friends, neighbors, etc. For loved ones, of course the mental and emotional part can be difficult.
Posted on 6/19/23 at 11:35 am to TigerinPurgatory
All cancer is different as are the patients. Tough to generalize.
Last December I got diagnosed with stage 4 melanoma in lungs, stomach, skull, brain, femur, appendix and gall bladder. I immediately got taken off my leukemia chemo since it was probably demolishing my immune system to cause such a rapid spread. I thought I was about finished.
A month later I got put on infusions and when they did a rescan two months later melanoma shrinkage everywhere from 30 to 50%, rescanned again three months later and continued significant shrinkage of another 30- 50% and only one new brain melanoma identified.
I feel great, being off chemo makes a world of difference and my leukemia is in remission. Don't know how long this stuff will work but it activated the shite out of my T cells and cancers arse is presently being kicked.
Previous had prostate cancer (radiation) and several surgeries for skin melanomas removed. Nothing caused any pain but the chemo for the leukemia and that was very bearable.
if there is a point to the story it is medicine is getting better, and sometimes you get lucky. in my case i've been lucky often. Also, don't know how long this will work but for now I am more than pleased.
Last December I got diagnosed with stage 4 melanoma in lungs, stomach, skull, brain, femur, appendix and gall bladder. I immediately got taken off my leukemia chemo since it was probably demolishing my immune system to cause such a rapid spread. I thought I was about finished.
A month later I got put on infusions and when they did a rescan two months later melanoma shrinkage everywhere from 30 to 50%, rescanned again three months later and continued significant shrinkage of another 30- 50% and only one new brain melanoma identified.
I feel great, being off chemo makes a world of difference and my leukemia is in remission. Don't know how long this stuff will work but it activated the shite out of my T cells and cancers arse is presently being kicked.
Previous had prostate cancer (radiation) and several surgeries for skin melanomas removed. Nothing caused any pain but the chemo for the leukemia and that was very bearable.
if there is a point to the story it is medicine is getting better, and sometimes you get lucky. in my case i've been lucky often. Also, don't know how long this will work but for now I am more than pleased.
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