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re: Kidney Failure, unknown cause. Dialysis in future.

Posted on 4/7/24 at 4:32 pm to
Posted by VetteGuy
Member since Feb 2008
28328 posts
Posted on 4/7/24 at 4:32 pm to
Dang bother, I'm sorry to hear this.

You've always been a great poster.
Posted by TheOcean
#honeyfriedchicken
Member since Aug 2004
42550 posts
Posted on 4/7/24 at 4:56 pm to
Just think about all the hot Latina chicks you'll be banging a year from now in mexico when you're feeling better
Posted by Jim Rockford
Member since May 2011
98343 posts
Posted on 4/7/24 at 5:45 pm to
quote:

I'm looking at tours of dialysis and it looks like I can get in a certain network and my insurance will cover. So if I travel I can still do it.
.


IIRC dialysis is automatically covered by Medicare regardless of age.
Posted by Bamafig
Member since Nov 2018
3170 posts
Posted on 4/7/24 at 5:54 pm to
Observations from someone 24 years in the dialysis business: carefully monitor your fluid intake, maintain a dialysis friendly diet and keep a positive attitude. I was told that the average lifespan of a transplant is only five years because patients return to the bad diet habits that accelerated their initial decline.
Posted by LRB1967
Tennessee
Member since Dec 2020
15862 posts
Posted on 4/7/24 at 6:02 pm to
quote:

It sounds like I'm in here until Wednesday


I hope things go well for you.
Posted by deltaland
Member since Mar 2011
90886 posts
Posted on 4/7/24 at 6:26 pm to
quote:

I may just say F it and deal with having the weak kidney


Well I wouldn’t advise that. Deal with dialysis and try to get the transplant soon as you can. Prayers sent
Posted by Hangit
The Green Swamp
Member since Aug 2014
39248 posts
Posted on 4/7/24 at 7:03 pm to
Get on getting that new kidney, ASAP.

Many here have a story worse than mine. 7 years ago I found out my blood pressure was aboot 245/140. High blood pressure does permanent damage to kidneys. I have been rolling at 31% since then. I keep the BP under control and am not yet in danger of needing to take further steps.

I have had 7 years to contemplate the decisions that are now in front of you. Get on that transplant list and get the dialyses. The nurses are kind and efficient. Never be a dick to them. (Many people are grade A assholes to them.) Follow the instructions and know that things do get better.

I know people that have come through it and are living well. Good luck, Bawseph.
Posted by armsdealer
Member since Feb 2016
11533 posts
Posted on 4/7/24 at 8:21 pm to
You don't want a life of dialysis, its worth it to get the kidneys, and at your age it wouldn't surprise me if you need more than one transplant. You are also fricking over your donor, we have two kidneys for a reason... all options suck really. Most people who donate don't look into all the negative aspects post donation.

Don't feel guilty about taking an organ either, I saw a case where a woman had high triglycerides, positive alcohol screen (why her triglycerides were high) and she just received at least her second liver a month ago. Drank two livers to shite and they gave her a third one and she is still drinking, maybe more, I didn't go that deep into it. If you get one from the list, take it.



Posted by OWLFAN86
The OT has made me richer
Member since Jun 2004
176158 posts
Posted on 4/7/24 at 8:23 pm to
Posted by SteelerBravesDawg
Member since Sep 2020
35080 posts
Posted on 4/7/24 at 8:37 pm to
Here's to hoping you get a kidney soon. That sucks. Hang in there. It's much better having two kidneys so I'd go ahead and get the transplant. But ultimately it's your decision.

Praying for ya.



Posted by kew48
Covington Louisiana
Member since Sep 2006
1115 posts
Posted on 4/7/24 at 8:58 pm to
Prayer Nalpolian !
Posted by htran90
BC
Member since Dec 2012
30139 posts
Posted on 4/7/24 at 9:37 pm to
Sorry to hear, but here's a family story hopefully it'll give you hope.

My aunt and uncle both were ESRD by the time they were 40. Vietnamese immigrants, lord knows what caused it. They came in their early 30s.

However, they both are into their 70-80s now and transplanted after some time. They worked normal jobs, had normal lives even though ESRD. Went on vacation. Attending out of state weddings. Life wasn't limited.

My aunt and uncle both did PD for a number of years as well, my uncle transitioned to iHD (super early) and went to work after into his 60s. My aunt stopped working in her 50s when she transitioned to iHD because it wore her out. They both did home iHD as well.

As long as renal function exists, this could be purely temporary depending on cause (atn and slow to recover) vs one day being permanent. If you're making urine, we'd call you ckd5 on HD. You may be just someone who needs twice a week HD for now as well. Time will tell
Posted by Hangit
The Green Swamp
Member since Aug 2014
39248 posts
Posted on 4/8/24 at 7:48 pm to
quote:

OWLFAN86


The stroke came later, right before the stent.
This post was edited on 4/8/24 at 7:50 pm
Posted by FieldEngineer
Member since Jan 2015
2132 posts
Posted on 4/8/24 at 8:01 pm to
quote:

7 years ago I found out my blood pressure was aboot 245/140


Posted by Hangit
The Green Swamp
Member since Aug 2014
39248 posts
Posted on 4/8/24 at 8:49 pm to
quote:

FieldEngineer


I was busy every day, walking miles and completing more than half of the rest, combined. I could have saved a lot of trouble by going to a Dr. in my 30's or 40's.
Posted by Doctor Strangelove
Member since Feb 2018
2965 posts
Posted on 4/8/24 at 9:05 pm to
My wife went through this recently. After a year of dialysis she got a transplant 8 weeks ago and is doing great. One word of advice is to get registered for a transplant ASAP with a very good hospital that is regarded as a top transplant hospital. She did hers at UAB and the staff and hospital are amazing. She was also registered at Mayo in Rochester but the kidney became available at UAB first. Whatever you do don’t go to some local hospital just for convenience.
Posted by Clames
Member since Oct 2010
16636 posts
Posted on 4/8/24 at 9:15 pm to
quote:

It's a large forum so I'm sure some of y'all do dialysis.



I had to do a few stints of dialysis after my first heart surgery. Absolutely miserable. My kidneys recovered and thankful I don’t have to go through that again and I hope it stays that way. I hope you recover too.
Posted by tunechi
Member since Jun 2009
10198 posts
Posted on 4/8/24 at 10:03 pm to
quote:

Kidney Failure, unknown cause.


quote:

Mine was in an extreme range for a long time. When it hit 250 over 130 then I finally got on meds. Had a medical episode. My kidneys almost shut down and I swole up.

Now I take 15 pills a day and my BP is still high but much better.

If I averaged 150 / 90 I would be ecstatic. .


quote:

Posted by Napoleon 11/2/20 at 11:28 pm


Doesn’t sound very unknown, baw
Posted by highup7
Alex City, Al.
Member since Jan 2005
1834 posts
Posted on 4/8/24 at 10:09 pm to
My best friend has gone through dialysis for the past ten years. He goes to dialysis at a place in Walker. I thing that the name of the dialysis center is D'Vita. The arm in which they stick the needle in is always swollen. He gets stuck in the same place every time he goes. He goes to dialysis three times a week and his sessions are four hours long. The only major problem that he has had in the past year is his arm getting infected where the needle is put in. He has had to go to the hospital for his arm and that is usually a two night stay. He still does all of the things that he is use to doing. The only difference I noticed about him is that he constantly sleeps. When he is through with his treatments he is always joking and smiling. I guess that he got use to the needle being stuck in. He only has one half of a kidney and he was born like that. I no longer go with him to dialysis because you would meet extremely nice people waiting for their time to get on the machine. When I didn't see a patient that I talked with I would always ask the girl at the front desk what happened to so and so and the answer I always got was that person passed away. I hope that you don't have any problems and your dialysis goes smoothly. It doesn't bother my friend and I'm sure it won't bother you.
Posted by Havoc
Member since Nov 2015
28628 posts
Posted on 4/8/24 at 10:29 pm to
Sorry to hear, prayers for a good outcome for you.
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